Last week my sweet cousin Tara’s little girl Brynlee passed away after a very hard-fought battle with SMA.  I am in awe of Tara, and the wonderful mother she is.  She is one of those people I look up to.  Never on Facebook or her blog did she complain and cry about why her, and why her child.  She just fought, and fought hard, for her daughter.  Her and her husband’s strength are amazing to me.  My Heavenly Father bless them during this difficult time. 

Brynlee Belle Liston

“Our Little Princess”
August 29, 2007 ~ June 06, 2011
Brynlee Belle Liston passed away peacefully surrounded by her loving parents and aunt on June 06, 2011.

Brynlee was born on August 29, 2007. At 5 months old she was diagnosed with Spinal Muscular Atrophy and her valiant fight began. Though her time here was short, Brynlee forever changed the life of anyone she met. Her intelligent eyes and sweet smile would melt the hearts of those around her.

Although Brynlee’s illness made her appear frail, she possessed an incredible strength of will, perseverance, and the ability to overcome incredible odds and challenges.

Some of her favorite things were playing with her baby sister Nakota, watching Spongebob with her Daddy, snuggling for hours with her Mama, and of course Cinderella. She recently got to have her first sleepover with her Aunt Tasha and her cousin Mia and she had the best time ever doing the things that other little girls get to do.

With Brynlee’s passing, we are reminded that her life is one to be celebrated. The simple joys that she took in every moment and the laughter that she met life with are lessons that we can all thank her for. Although she will be missed each and every day, we will forever hold her in our hearts and remember the pleasures she found in life around her.

Brynlee leaves behind many amazing caregivers. Her wonderful pediatrician Dr. Tanya Jackson, her loving and very special Nurse Robyn, so many home care therapists and caring staff at Primary Children’s Hospital, all treated her with an amazing respect, love and support that greatly enhanced her quality of life.

There is a special place in our hearts for Dr. Kathy Swoboda; because of her continued dedication, love and support Brynlee was able to beat some of her toughest medical challenges. Although a cure was not to be found in time for our Angel, we know that through the dedication of the medical community a cure for Spinal Muscular Atrophy will be found.

Brynlee is lovingly survived by her parents, Mark and Tara Liston, her baby sister Nakota, her grandparents, aunts and uncles, and her cousins. A private memorial celebration will be held for close friends and family.